I truly don’t even know where to start. This journey goes back to 2015. I’m sure if you have read my story you are familiar with what’s going on. In a nutshell, Egypt, myself and Christopher all have an autoimmune disorder/illness. Right now Egypt is the one with the worst numbers and we are working on getting her approved. My heart is heavy most days because I know the hell she endures in her own mind. It’s so hard to have to embrace someone else’s illness when you are also going through it yourself.
We started homeschool this semester and while the kids haven’t loved it a lot, they are working through it. This road is rough and I would have never imagined my kids would be going through this, but here we are. My days are mostly filled with homeschool, River, work, and phone calls to doctors, dentists, infusion centers, and insurance. Our current outlook is seeing one neurologist here in hopes to get IVIG approved but we do have an appointment with a new doctor in San Antonio in March. We will be traveling a lot and keeping many of you updated!
I really despise the insurance companies at this point. Denial, appeal, denial, appeal, etc. the phone calls and letters and waiting and praying. It’s an unending process most days that leaves me drained and frustrated. Use to, when something went wrong I knew who to talk to or send a complaint to, but now I don’t know what to do anymore. I have literally had to let God handle this. I just heard TD jakes say God wants you to come to the alter first not last, not when you don’t know what to do but first!! So I’m out of options and I’m waiting. This is where the verse “BE STILL AND KNOW” comes in to play. Know that he is taking care of it, know that things are going to work out. Something I keep telling Egypt during all of this, is KEEP LIVING! The one thing that keeps me positive is the man across the street whom has cancer but still everyday he lives! He goes walking, he laughs, he waves, he smiles, and continues to LIVE!
The expense of everything is really over the top. Plus we just got denied for all of dental coverage last year. Basically insurance made it look like things were covered when in fact we were not. So now we were hit with massive back dated dental and medical bills. They didn’t cover over 4000 in blood work alone and that is just for me.
This is just a little of what my day entails. So while some of you are planning your family trips and spring break vacations, we are fighting for care, for treatment, for just better days ahead. I’m frustrated, I’m tired and ready for a breakthrough!! Thanks to all for the prayers and the purchases from Egypts website which go to medical expenses. Y’all are amazing humans!