And so here goes…..

 Hi, my name is Egypt and I have Mycoplasma Pans Disease. This disease is unrecognized by society and usually most doctors. However, I was lucky enough to find a doctor to give me a diagnosis. 

The first doctor I went to was supposedly an “Expert” in working with people with Pans/Pandas disease. Well that was a lie. He told my mom I was crazy and as we were telling him my symptoms, he was googling things on his phone. By the end of the appointment, he said I needed to be on Prozac. He was very uneducated. After that appointment my mom continued to do lots of research and I started going to a counselor. 

The next doctor I went to was a pediatric doctor who knew what Pans/Pandas was. He talked to me about my problems and actually listened to my mom. He said he had heard of what I was going through and knew of a neurologist who could help me. He gave my mom a referral and told her he was going to try to get me into the office. After waiting for a while, we still didn’t get in for at a week and a half and my mom found a new doctor who could help me. 

The new doctor was a woman who we thought knew what she was talking about. She knew partly of what I was going through but everything came back to limes disease. She actually specialized in limes disease but she also diagnosed me with Mycoplasma pans disease. The thing was that she didn’t really care about the myco, what was really my problem but she really cared about the lime’s disease. After seeing that nothing was happening my mom finally got an appointment with the neurologist. 

The neurologist actually knew what he was talking about and really listened to us. He ran more tests on me and diagnosed me with other things too. He soon put me on antibiotics to see if my numbers would go down. None of the antibiotics worked so after a few more appointments he tried to get me IVIG. 

Since then we have been in a constant battle with the insurance because they won’t cover it. If they don’t cover it the price will be 15,000 dollars. Now we are just playing the waiting game trying to see what will happen next. If this doesn’t work we might have to go to a doctor in San Antonio. She likes to push IVIG. Hopefully she can get it for me.