So as you all might know, Egypt had her first round of IVIG and it was hard. We never expected the side effects of this all. We started off in a horrible hotel and ended up leaving and going somewhere else, in which was amazing. Many thanks to Drury Plaza hotel for the over the top service!! The customer service here was just over the top especially with needing extra pillows, blankets, etc to make sure Egypt was comfortable. It was truly a long night and we had no idea what to expect. Also a big shout out to the Infusion center, the nurses there are great!!!
Right now it’s hard for all of us. Egypt going through treatment, in the middle of selling our house and moving, and a couple of weeks ago we found a lump on bubbas lymph node. I’m not sure why god has chosen our family to walk this journey, but we are putting on the full armor of God, like it says in Ephesians 6:11. As a mom I just want to fix it all and I can’t.
Just trying to process everything some days is enough to make me quit everything but I remember what a very good friend told me when I was struggling with breastfeeding. She told me just keep saying I will quit tomorrow and before you know it you keep pushing to go another day!!
I was so upset the other day and I texted my brother and he said something that I keep holding onto. He said “I’m sure a lot of it’s just “normal life” shit but it just seems overwhelming now because of how much stuff you’re already working through. There is a silver lining though. The hardest thing to remember is we aren’t promised any certain quality of life, we aren’t guaranteed good times so we have to make the times we have the best we can. I know you guys really are in the thick of it now, but it’s temporary. Every moment of life is temporary, so enjoy the now, find the happiness in today.”
So at this point we just keep pushing and know We are NEVER out of the fight!